Magic when you need it most!

There are times I must admit that I wonder if we did the right thing in starting the Tough Warrior Princess non-profit organization. Some days it seems daunting. The auction items for our May silent auction fundraiser are coming in much slower this year, as are donations and it gets stressful.  We want to pull off the best fundraising event possible. It's the Type A personality in me and in a lot of our committed teammates. I am realizing more and more that there just is not time to fit it all in and be able to do everything you want to do.

We had a TWP board meeting this week and our worries were dicussed. After the board meeting, I felt better, as we accomplished a lot. One of the topics were that we didn't know how we would get a cake donated for our event this year. Another topic was wondering if we were going to get the grant we had applied for to start doing survivor baskets. Another worry that I had this week is my own fundraising for my Komen walk.

We have always said the there is something called TWP magic. It often happens when we are all together, but there are so many serendipitous events that have led us to where we are it is almost a magical journey. Well, in true style and just when we needed the boost, TWP magic struck again!!! The morning after our TWP board meeting, we get a new membership form submitted on our website -- it is a woman who had been to our event last year and was wanting to be able to help. Guess what she offered?!.... To donate a cake for our event!!! 

Today, we received word that we got the grant from the Institution for Savings!!! Our very first grant!!! This grant will be used to make Survivor Gift Baskets. These baskets will contain various items one needs when going through a cancer dianosis and treatment. We want to really show our support for women with a cancer diagnosis and help her through it. The basket will be the first symbol of our commitment and caring.

Then, I was contacted by my very favorite people -- Kelsey and her mom. Kelsey is the young girl who, for the last 2 years, has held her birthday party and asks that her gifts be in the form of donations to Susan G. Komen 3-Day for the Cure to help support my walk! They let me know that once again, Kelsey has chosen to do yet another birthday party without gifts for her, but gifts that she hope will help others. Kelsey's personal story is one of strength, determination, power and love like I have never seen. I have written about her in my past blogs. Her story is more than magic.

Another exciting thing on the horizon is the connection we have made with a company called The b Positive Project. I ran into the company when running in a 5k last year and bought a great tshirt with their logo.  Their message.. b Inspired b Motivated b Positive. The purchase of this TShirt helped fund the charity that had sponsored this particular 5k. b Positive, in their line of business, helps charities succeed and espouses a fantastic message. We are now in talks with them to get a line of clothing with our Princess on the front, but also the b Positive logo! Sales of these shirts will further help fund our cause and help us get word out about The Tough Warrior Princesses.   (If you go to their website and buy anything, please use TWP code so 20% of proceeds come back to us!)

So, wrapping up the week, my attitude has shifted back to that of power and hope. I am back to being inspired, motivated and positive!! That is where my attitude belongs.

Please, please mark your calendars for May 19th. Our 3rd Annual Dance Like a Princess Silent Auction will be held at the Holy Family Parish Hall in Amesbury. Tickets can be purchased online at www.toughwarriorprincess.com.

Thank you all for your support!!

Blessings!

Patty

.....IT IS THE STUFF THAT MATTERS MOST!

After being diagnosed in 2008 and having my treatment plan after my initial surgery, which found more cancer, completely blow up into more surgery and more treatment, I got really scared.  We made the plans for my next surgery, which would be a double mastectomy with reconstruction.... I was beyond frightened but resolved in what the next steps had to be.  I looked at my young children and realized before the next round of surgery we needed to get away.   Surgery was planned and the trip was planned.  We took the kids to Disney and had the time of our lives.  I truly enjoyed that vacation and it helped put my mind in the right place. 

I just returned from a trip to Florida with my family - not Disney this time, but just a warm, sunny relaxing trip with my beautiful family.  It was our first trip - other than skiing - since that time.  It put me back in the same space in a lot of aspects and helped me to appreciate the small stuff -- which is not really the small stuff .... It is the stuff that matters most.

Please remember in your daily lives, what if tomorrow it were all to change?  What would you cherish about today?  I cherish YOU - my friends and my family.

Please take a moment to hit this link to my friend and teammate, Sherri's blog.  Sherri eloquently explains why we continue to support Komen and outlines why we are working to grow THE TOUGH WARRIOR PRINCESS organization.  Our mission is to help women fighting any type of cancer.  Cancer is cancer.  Doesn't matter the origination - WE NEED A CURE.... NOW!

Sherri's Blog:  http://sherris3day.blogspot.com/. 

Without Sherri, there would be no Tough Warrior Princesses!  For those of you that don't know Sherri, she is also a survivor.  She is my age and went through her diagnoses and treatment just before me.  I remember being so scared for her then. Watching her and her family of 3 young children cope with it all.    Then, when it happened to me, she became my source and my family's sources for understanding, comfort and simple friendship.  We have been through so much together and together will  MAKE A DIFFERENCE. 

Blessings!

Patty

An October Update....

In my last blog post(a long time ago), I talked about the inspiration and beauty of the 3 Day walk and what it's like to be surrounded by people all fighting for the same cause. Magical.

A few weeks ago me and 3 other Tough Warrior Princesses, Cheryl, Sherri and Jody all traveled to Washington D.C. to volunteer to work the 3-Day walk there. We volunteered for traffic control. We flew into D.C. early Thursday morning in order to be there the day before the walk started so that we could attend "crew" meetings that instructed us what we would be responsible for over the coming 3 days. Our Traffic Control duties seemed like they shouldn't be too difficult and we were hoping to get the opportunity to cheer on walkers. Well.... our duties as traffic control were a bit harder than imagined. To say that we were soaked, muddy, tired beyond anything I have experienced would be an understatement.

The weekend was wrought with emotion as Jody experienced a loss in her family while we were away. Our teammate Maurine was facing new treatment for her advancing breast cancer that Monday, and our thoughts never went far from another teammate and her beautiful young daughter, who are experiencing some extremely tough times.

Arriving home, I don't think I have ever been so happy. Seeing Mike standing in the terminal waiting as we arrived from our flight was the highlight of my weekend for sure!

It was a long weekend spent for a cause so near and dear to my heart. I was challenged physically and emotionally. The three women I shared the experience with were my rocks. I'm honored to have done this with them. I'm very glad to have had the experience. Thank you and congratulations to all the D.C. walkers! $7 Million raised!!! I will tell you it is much easier, in my opinion, to walk 60 miles then Crew the event. I think I'd even walk 120 Miles!

The next day, I had the opportunity to take Maurine (fellow Tough Warrior Princess) into Dana Farber to start a Phase I trial treatment. Maurine has been in trial treatment before, but not Phase I. We arrived at 7:45 in the morning and stayed until 8:15 that evening. To say that Maurine is a guinea pig would be an understatement. We spent the day on the research floor - Maurine had tests run in the a.m. and then, once cleared had her first treatment of this new trial. After each weekly treatment that Maurine will now receive, she then has to spend 8 hours in the research lab having heart and blood tests. She is one of 16 women in the entire world enrolled to this trial. It was an eye opening experience... scary, exciting and interesting. Side effects? Drug interactions? Well some are known, but lots aren't. She is the research! Despite what the circumstances were, Maurine and I had a great day. (at least I think she had a great day - I know I did - but I wasn't the guinea pig.) We laughed a lot, because if you know Maurine, she can make any circumstance comical. It wasn't all laughter, as we talked a lot about life and how unfair it can be. But if you put your situation in perspective, it usually isn't all that bad. Maurine bounced around the Dana Farber building entertaining her chemo nurses from the prior trial and even entertaining her oncologist. She opined about her thoughts on the cure. Of course, she always has a new idea brewing!!

In honor of breast cancer awareness month, I must say this. In watching Maurine deal with the side effects of the trial, about getting bad news of another friend with late stage metastatic breast cancer, in remembering it is the month I lost my young mother to breast cancer 17 years ago on her 25th Wedding anniversary...

It seems to me that we often make a breast cancer diagnosis look easy. Look at the images on TV, all the talk of survivors, all the pretty pink.... I know that I have always been vocal about the bright side of my experience and always say in some strange way it has changed me for the better. It has and I am grateful and I live differently now. But, going through it was Hell for me and my family and friends. There is nothing uplifting or pretty about it, as with any and all cancers. It is not a feel good experience. Yes, there are better treatments than their were 17 years ago when I lost my mom... but there is NO CURE. That is what needs to be focused on not just in October and not just breast cancer.

Having got that off my chest....

We have also spent our time recently in the Mellon family raising funds for Juvenile Diabetes for the walk that Katie and her 'Krew' did in Boston on October 2nd. The following weekend we continued our fundrasisisng efforts as we hosted the Roberta Mellon Memorial Tournment at the Amesbury Golf & Country Club. The tournament was a great success and we are blessed with some great friends and family. Looks like about $4,000 was raised after expenses. Most of the money will go to Juvenile Diabetes Research Foundation and a portion will also go to the Amesbury High School Golf team. It was great to have some members of the golf team present and playing in the tournament. The local business community of support was fantastic!

Our Tough Warrior Princess Team training continues for the upcoming October 30th Komen 5k Race for the Cure. 9 weeks ago, we started a Couch to 5k running program and the turnout was amazing. We have runners and walkers at all levels and since we are training at the track, we can all run our different paces while motivating one another to continue. We will continue training and will be running as Team Tough Warrior Princess on October 30th in Boston. If you are interested in running, sign up and become a Princess. The more the merrier!

The Princesses got together this past weekend for a night out. I was so nice connecting with some that I don't get to see as often as I would like. It seems that everyone on this team somehow plays off one another and each person is a better person as a result. Going into the 2011 walk, I was worried that a team of 32 people really couldn't share the close bonds like a team of 10 did -- How wrong I was!

The people in our lives help shape our lives ....

I believe certain people are in our lives for a reason. I also believe that the people we choose to surround ourselves with help determine who we are and how we behave and view adversities. We can look at adversity and face it head on and overcome it in the best way possible or we can let those situations overcome us.

This past week I spent some time with two true Tough Warrior Princesses. I have neatly labeled myself a Tough Warrior Princess and to me, I am so much tougher than I ever thought I could possibly be, however, in most area's of my life, I truly have Princess status. I am married to the MOST wonderful man in the world. He lets me be a Princess and knows there are so many ways I am not tough and barely know what a warrior is. When my car breaks down, the windshield washer fluid gets low, a light goes out in the house, the cat pukes, an appliance breaks - not a worry - Mike will take care of it. I am helpless! I can't imagine taking care of a home on my own. And he is a great cook too!!

My friends Lisa and Sue - they are Tough! Both are single mom's with teenage children. Yes, I knew they were both intelligent, accomplished and strong; but I did not know the extent of it. Mike and I rented a house with them up in Stowe to ski during February vacation week. I watched these two women all week and they showed me what it means to be tough. Sue's car transmission blew right before the trip and she had to deal with not only how to get it fixed while she was away, but to figure out how to pay for such a huge unexpected expense. Yet, she skied and her kids skied and they dealt with it; and she was a blast to be around. I got a glimpse into Sue's life and I am in awe of what a great mother she is and how extremely hard she works. She has to deal with stuff that I would never know how to deal with on my own. Then there is Lisa, who I have known a lot longer. Lisa took care of Alexa for me since Alexa was very young. I always knew how strong and independent she was. I am so happy that Lisa has had such a huge influence on Alexa's life, what a great example! Lisa always finds a way to make things happen. She never sits back and always has a plan. I watch her work two jobs and raise 3 amazing children and own her own home. Her children, unknowingly still, are so blessed. That she finds ways to afford to always take them on the special trips that will define their childhood memories and be a great role model.

I'm speaking for Lisa and Sue here, but life hasn't gone exactly as planned for either of them, yet they are stunning examples of strength and positive action and certainly show me how to be better.

The official definition of a Tough Warrior Princess is a strong female personality, determined in the pursuit of her goals and often eager to do take on a typical 'man's work' like fighting wars or performing manual labor to accomplish those goals -- when of a royal backround, a woman warrior may be called a warrior princess.

I want part of the mission of the Tough Warrior Princesses to be to show women who are in tough situations that they can rise above. You can sit back and have the pity party and let life swallow you or you can decide to be the change by making it happen. Sometimes simply taking the focus off of yourself is the beginning of true change.

Sherri and I went to our oncology appointments together recently at Dana Farber. We have the same oncologist and coincidentally had appointments the same day. We were talking with our oncologist about the fact that New Balance had done the video and how we had recently set up the Tough Warrior Princesses as an organization and would be filing for non-profit status. This gives us room to direct funds we raise in other directions, besides just our Susan G. Komen 3-Day for the Cure walks. Our oncologist told us stories of the needs of women she sees every single day. She sees a lot of younger women who are either single or divorced with small support systems. Every day that they come in for treatment is a day out of work with no pay - which cannot be afforded. These younger women have trouble finding rides to treatment, as their circle of friends typically all are working as well and also cannot afford to take a day out. I remember how lucky I felt that I had not only a HUGE support system, but the luxury of taking time out of work and two layers of disability policies from which to draw. And, still, how hard it was to stay strong and face each of the steps of treatment and unknown outcomes. I surrounded myself with people who certainly let me have my down moments and pity parties, but each and every time they pulled me up by an example of strength and wisdom. (Call Cheryl if you want to know what an Un-Tough Warrior I was at moments of my journey)

I want to help women who don't have the support systems, who don't have the luxury of disability or the luxury of friends waiting in line to take them to chemo. Who have to deal with getting children to and from school or day care, when they can't. I'm sure some of these women have never had examples of what a Tough woman can do when she sets her mind to it and never had the luxury of being a princess.

I wish I could describe to you (I'm sure I will in another post) each of the women and my wonderful token male brother we have on the Tough Warrior Princess team this year. We are truly defining Tough Warrior Princess. Each person brings a whole new dimension to our team and I know that as a group we have the power to make a HUGE difference.

Lastly - but certainly not least -- please mark your calendars - Saturday, May 14th for the 2nd Annual Dance Like A Princess Silent Auction!!! Plans are well under way and tickets will soon be available for purchase directly from our website. It will be held from 7-12 in Amesbury at the Holy Family Parish Hall.

Thank you so much for your support!

Blessings!

Patty

2 Years - Cancer Free! Celebrating Life!

It's amazing what can change in two years. Two years ago today, February 9th, I was in major surgery and facing the fight of my life. Knowing that once I was healed from the surgery, the chemo and a year of Herceptin treatments would begin. All that and Katie had also just been diagnosed with Juvenile diabetes. What a scary feeling and completely dark days those were. However, whenever we go through any tough times in our lives, that's when we first find inner strength and whatever we are lacking in inner strength and wisdom --- well, that's where our friends and family pick up the slack.

After this experience, I do believe that in our darkest times, we truly begin to learn how blessed we really are. You start to think of all the things you took for granted before and vow never, ever to take anything for granted again. One day everything is fine, yet you are stressed about some meaningless things and the next day you wish you could just go back to the absolute perfection of yesterday. It is a complete change of perspective in a major way.

I have read a couple of things lately that have made me sad, but also reflective. It's about the happy face survivors put on and the flowery world within which some live, when instead of spreading such a message, the reality is that cancer sucks. The articles basically said it is all a world of pretend and survivors needing to escape reality. I first took offense to that and then I started to think about why so many survivors do seem to be truly happier and feel more blessed than they were before. There is certainly truth to the fact that as survivors, we do need to escape reality. We can't live our lives looking at statistics and thinking about what might happen. But in my experience, I am truly happier and realize my blessings more than I ever did before. I have stopped worrying about a lot of the meaningless stuff I used to worry about, I thank God for my life each and every day, I feel much more connected to my friends and family and am much more willing to reach out of my circle and help someone else. I feel others pain and struggles so much more deeply now. I am much more open to live and experience life and take risks and challenges that I would not have taken before.

After feeling the love of my friends and family that truly have held my hand, washed my hair, watched me lose my hair, counseled, consoled, put up with rages and tears and just been there every step of the way, I will never, ever be the same. How can one not feel blessed? How can one not be ready to give back? Flowery? maybe.... but I feel like the moment I forget this experience or let it dull in my mind, that I could go back to being insensitive, stresssed and simply not aware and lacking the Hope that I now have.

I am two years cancer free and one year out of treatments!!! How can I not be filled with happiness and be forever grateful. I'm here. And since I am here - well, I am going to make a difference. Sunshine? Sure!!! Bring it on!!!



TEAM Update: Tough Warrior Princesses now have 24 team members ready to raise $2,300 each and walk 3 Days and 60 Miles. We had a team meeting the other night and what a great group of strong, motivated women. Planning is underway for a number of fundraisers, including our dance and silent auction that will hopefully be held May 14th. (We just need to confirm a venue) I was blessed enough to be able to volunteer at a Komen Get Started Meeting in Beverly and what a great experience. Many of the new Princesses came to this meeting and they were just awesome. I am truly surrounded by a team of women that are strong, faithful, loving, kind and READY to KICK SOME CANCER BUTT!!!



No one should have to go through what me and my family have been through. No one should have to go through what so many of my friends and acquaintances fighting this disease are going through. The realilty is that this disease, whether breast, prostate, lung, ovarian, pancreatic on and on and on is dreadful. It takes lives and ruins lives. We all need to take a stand and try to stop it.


Be MORE and Count your Blessings!!

A New Year, A New You!

A New year.... it feels like a blank slate. It feels good, yet uncomfortable in some ways. I am proud of what I accomplished in 2010 and although it was not an easy year by any means, I feel good about the person I have come to be.

I have never really set New Year's resolutions before and I'm not sure I want to call my 2011 thoughts resolutions, but I guess if I don't I'm not commited to them and the list is long. Most of my resolutions are around just being a better person and paying it forward. I want to live more in the moment and have faith that everything is for a reason. I want to challenge myself with new things.

Last year I kept a log of my walking, running and general exercise. I tracked hours and miles. It was fun and challenging to be sure there weren't to many days that went by where I did nothing. It really helped keep me motivated the entire year - which is definitely a first! This year I have also created a log and simply want to surpass what I did in 2010. I have read so many articles about exercise and the evidence showing that it lowers your chance of a recurrence for breast cancer. I want to be sure I am always doing everything in my power to prevent this disease from ever returning to my body. I'm building my armour - by diet and exercise and thoughts.... and also by doing what my doctor tells me and taking the med they tell me to take.

I am so looking forward to this year's 3 Day walk. We have 18 Princesses officially signed up and a few more that have committed, but just not signed up yet. It is AWESOME!!! These women are beyond fantastic. It is a great group with a lot of heart and spirit and we are ready to take on the world. We are looking for effective ways to fundraise - as that is the important piece of this whole thing. It is difficult hitting family and friends - especially year after year. I am hoping to find ways to get businesses involved in our cause and find a win-win scenario. I have been blessed already by the support of many businesses for my 2011 walk and am so thankful. Any ideas and thoughts that anyone has would be so welcomed!! We also have a few people that have volunteered their time and talents to help our fundraising efforts. They don't want to walk, but want to be involved in the cause and we are so grateful. Our first task is to find a hall to hold our May 2011 Silent Auction and Dance. I think we have outgrown the Lafayette Club, unfortunately. They were so kind to donate the hall to us, it made for an effective fundraiser.

My teammate Sherri Ziomek and I will both be involved in a few of the Get Started meetings for Komen. If you are thinking of doing the walk this year, attending one of these meetings is a great way to learn about the event and what is involved if you decide to sign up. If you would like more information, please let me know. The meetings are in January and February.

What are your resolutions this year? Take a step and be more than you thought you could ever be and then take a moment to Pay it Forward.
Wishing you well in 2011!!!

Blessings!
Patty

Staying Strong and looking Ahead... and holding on to Memories....

As most of you know, our family is going through a difficult time with the passing of Mike's mom, Roberta Mellon on September 15th. Thank you to everyone for the love and support. Cancer SUCKS! That is all I can say. We love you and will miss you, Bobbie.

Since my last post...

Went for my first follow up checkup with my oncologist at Dana Farber since ending treatment earlier this year. It was strange being back as someone just being followed, but not being treated. Scary thoughts tried to come up, but I reassured and rationalized with myself. I am healthy and cancer free. There is no evidence to the contrary.

I looked around at all of the other women young and old that were in the midst of it all. You could tell the ones that were there for initial consults by the paperwork they were filling out and the one's going for scans and the ones there to meet with their oncologist and go for treatment. I looked around at the support systems they brought... - the husbands, the friends, the family - each dealing with it in their own way. So many people go through that center in one day - just on the breast cancer floor -- it is unbelievable.

I sat there looking out the window of the 9th floor of the building with all of these thoughts running through my head. I was looking at the new Dana Farber building that they have been in the midst of building since I started going there. I have watched that building be built from it's foundation. Each appointment I had, some new phase of the building project was being started. I saw all of the inner beams of the building as the cranes lifted them and put them in place. On the main beams in neon paint are names painted big enough that you can see them from a ways away. I believe they are the names of children affected by and being treated at the Dana. I had the opportunity one day last winter to sign a beam in memory of my mother. The beams are all but covered up now. Now you can see the workers inside the building working in the stairwells and all over the building. I believe the building is slated to open in 2011. The Longwood Medical area in Boston seems to be thriving - it is so sad - the construction of new wings and new buildings to accommodate growing numbers of patients. Cancer patients. It is hard to believe how far that building has come in what seems like such a short time -- I feel the same way about myself and my journey. I am now more put together than I have ever been, I am strong, I have a bigger capacity to give of myself and I see a bright future ahead.

Are you wondering what is up with the Tough Warrior Princesses? We are having a reunion tomorrow (Sept. 19th) at Vicky's house. Although some of us see each other all of the time, there are others I haven't seen since our walk. I can't wait to feel the magic of what happens with the 10 of us get together. Good times!

We are working on the Oct. 1st "Pink Carpet Premiere" party to be held at the Lafayette Club at 7:00 p.m. in Amesbury. We have learned that our documentary is now complete and has been sent off to New Balance. There is a 10 minute film which will be posted on YouTube (will post the link once we have it) and used at Komen events for which New Balance is a sponsor. There is also a 90 second teaser film for New Balance Retail Stores and a 30 second spot in the works as well. They will be released on Oct. 1st and the Tough Warrior Princesses will be seeing it for the first time at the party! We hope that you are able to come join in the celebration of a beautiful journey with us. Please bring your friends. There is a $10 suggested donation at the door, as we are already fundraising for our 2011 60 Mile / 3 Day walk. We are hearing that our friends from the advertising agency, Marketing Drive will be there along with representatives from New Balance, YouTube and possibly Element Productions. The people that created this are truly spectacular and we hope to remain friends for a long time.

We are running a 5k as the Tough Warrior Prinesses on Sept. 25th in the Susan G. Komen Race for the Cure in Boston. We have all been training and have a lot of first time runners. It has been so much fun watching friends and family that had never run before take on this challenge and I can't wait to witness them conquer it. I have a new respect and love for each of you. Determination and a goal - you can do anything! If anyone is interested in joining the team and running or walking with us that day, please let me know. The more the merrier!!

The next day, Sept. 26th is Katie's walk for Juvenile Diabetes Research Foundation. Katie has raised over $1,000 towards her cause this year and we are so proud of her!!! If you ever want to see someone with strength and determination look no further than Katie. She is my HERO. Since the day she was diagnosed with Juvenile Diabetes 2 1/2 years ago, she has been dedicated to the cause. So far in these 2 1/2 years she has raised $8,500. She deals with constant blood sugar checks, highs, lows - nurses, doctors and parents who sometimes suffocate her. She handles it all with grace and rarely complains.

I will post another blog update soon letting you know how we fared at our Reunion, the 5k Race and the Juvenile Diabetes walk. And... to remind you again on the Pink Carpet Premiere.

Thank you for all the love and support!!