Magic when you need it most!

There are times I must admit that I wonder if we did the right thing in starting the Tough Warrior Princess non-profit organization. Some days it seems daunting. The auction items for our May silent auction fundraiser are coming in much slower this year, as are donations and it gets stressful.  We want to pull off the best fundraising event possible. It's the Type A personality in me and in a lot of our committed teammates. I am realizing more and more that there just is not time to fit it all in and be able to do everything you want to do.

We had a TWP board meeting this week and our worries were dicussed. After the board meeting, I felt better, as we accomplished a lot. One of the topics were that we didn't know how we would get a cake donated for our event this year. Another topic was wondering if we were going to get the grant we had applied for to start doing survivor baskets. Another worry that I had this week is my own fundraising for my Komen walk.

We have always said the there is something called TWP magic. It often happens when we are all together, but there are so many serendipitous events that have led us to where we are it is almost a magical journey. Well, in true style and just when we needed the boost, TWP magic struck again!!! The morning after our TWP board meeting, we get a new membership form submitted on our website -- it is a woman who had been to our event last year and was wanting to be able to help. Guess what she offered?!.... To donate a cake for our event!!! 

Today, we received word that we got the grant from the Institution for Savings!!! Our very first grant!!! This grant will be used to make Survivor Gift Baskets. These baskets will contain various items one needs when going through a cancer dianosis and treatment. We want to really show our support for women with a cancer diagnosis and help her through it. The basket will be the first symbol of our commitment and caring.

Then, I was contacted by my very favorite people -- Kelsey and her mom. Kelsey is the young girl who, for the last 2 years, has held her birthday party and asks that her gifts be in the form of donations to Susan G. Komen 3-Day for the Cure to help support my walk! They let me know that once again, Kelsey has chosen to do yet another birthday party without gifts for her, but gifts that she hope will help others. Kelsey's personal story is one of strength, determination, power and love like I have never seen. I have written about her in my past blogs. Her story is more than magic.

Another exciting thing on the horizon is the connection we have made with a company called The b Positive Project. I ran into the company when running in a 5k last year and bought a great tshirt with their logo.  Their message.. b Inspired b Motivated b Positive. The purchase of this TShirt helped fund the charity that had sponsored this particular 5k. b Positive, in their line of business, helps charities succeed and espouses a fantastic message. We are now in talks with them to get a line of clothing with our Princess on the front, but also the b Positive logo! Sales of these shirts will further help fund our cause and help us get word out about The Tough Warrior Princesses.   (If you go to their website and buy anything, please use TWP code so 20% of proceeds come back to us!)

So, wrapping up the week, my attitude has shifted back to that of power and hope. I am back to being inspired, motivated and positive!! That is where my attitude belongs.

Please, please mark your calendars for May 19th. Our 3rd Annual Dance Like a Princess Silent Auction will be held at the Holy Family Parish Hall in Amesbury. Tickets can be purchased online at www.toughwarriorprincess.com.

Thank you all for your support!!

Blessings!

Patty

.....IT IS THE STUFF THAT MATTERS MOST!

After being diagnosed in 2008 and having my treatment plan after my initial surgery, which found more cancer, completely blow up into more surgery and more treatment, I got really scared.  We made the plans for my next surgery, which would be a double mastectomy with reconstruction.... I was beyond frightened but resolved in what the next steps had to be.  I looked at my young children and realized before the next round of surgery we needed to get away.   Surgery was planned and the trip was planned.  We took the kids to Disney and had the time of our lives.  I truly enjoyed that vacation and it helped put my mind in the right place. 

I just returned from a trip to Florida with my family - not Disney this time, but just a warm, sunny relaxing trip with my beautiful family.  It was our first trip - other than skiing - since that time.  It put me back in the same space in a lot of aspects and helped me to appreciate the small stuff -- which is not really the small stuff .... It is the stuff that matters most.

Please remember in your daily lives, what if tomorrow it were all to change?  What would you cherish about today?  I cherish YOU - my friends and my family.

Please take a moment to hit this link to my friend and teammate, Sherri's blog.  Sherri eloquently explains why we continue to support Komen and outlines why we are working to grow THE TOUGH WARRIOR PRINCESS organization.  Our mission is to help women fighting any type of cancer.  Cancer is cancer.  Doesn't matter the origination - WE NEED A CURE.... NOW!

Sherri's Blog:  http://sherris3day.blogspot.com/. 

Without Sherri, there would be no Tough Warrior Princesses!  For those of you that don't know Sherri, she is also a survivor.  She is my age and went through her diagnoses and treatment just before me.  I remember being so scared for her then. Watching her and her family of 3 young children cope with it all.    Then, when it happened to me, she became my source and my family's sources for understanding, comfort and simple friendship.  We have been through so much together and together will  MAKE A DIFFERENCE. 

Blessings!

Patty

You never know what kids are thinking at any age. Remember back to your childhood about some of the perceptions that you had? I didn't realize that my 15 year old daughter, Alexa, had any fears about cancer until recently. Of course, when I was first diagnosed there was a lot of fear, but then we got through the tough times and healed and life seems mostly normal again. This winter Alexa had an extremely sore throat like she had never experienced before. She was feeling her neck and felt swollen lymph nodes. She confessed to me that she was extremely worried -- upon inquiry why, I learned that she feared she had cancer. I told her it was most certainly not cancer and asked her why she would think that. She said, "mom, it is everywhere. Your mom, you, so many of our friends and even Emma. Why wouldn't I be afraid it could be me too?" Emma, for those of you who don't know is the daughter of the Treasurer of the Tough Warrior Princesses. Emma is 8 years old and fighting Neuroblastoma. I was so shocked that Alexa saw things as she did - yes, I understand why she does, but she always seems oblivious and happy and I never would have guessed her fears. The good news in this story is that we brought her to the pediatrician who declared .... Strep Throat!! Alexa was so happy she bounced out of the Dr.s office.

I have mentioned before on this blog that Alexa is planning to do the Komen 3-Day walk with our team this year. She will be 16 this summer and officially old enough to participate in the walk! She is officially a Tough Warrior Princess! I can vouch for the part where she is a Princess, I will have to provide updates on whether she really is a Tough Warrior... You do have to be tough and committed to raise the minimum $2,300 and do the training! Sure, she is in great shape, but walking 60 miles if your body is not used to walking long distance can be painful. A lot of walking is required just to harden off your feet so you are less suseptible to blisters. We'll see if she can handle the early morning training walks....

What she has impressed me with thus far are her fundraising efforts. Last week she painted the Amesbury High School Pink!!! She and a group of friends in the Peer Leaders group organized and did a bake sale, sold bracelets and candy. She is also selling pink ribbons to write an honor or/memory of name on them. She will walk the 60 miles with all of those ribbons. I am so proud of the work and commitment she has shown to this cause. She doesn't have final totals but it looks like $600 was raised after expenses. I know she will get to her $2,300 goal and easily surpass it!! Go ALEXA!!! 

The Tough Warrior Princesses have been very busy! The Komen firestorm has been troubling. I just don't want to see decisions made politically. I personally didn't care either way that a small amount of funding wasn't being sent to Planned Parenthood - only because they don't do mammograms anyways. I just want to see the money going to research. I have personally experienced as have so many of my friends the life saving trials and benefits of research. But we need so much more. For that reason, I will continue to walk for Komen each year. When you have Stage IV metastatic breast cancer, every bit of research counts.

But, that leads me up to the importance of our non-profit organization - The Tough Warrior Princesses. I'm not sure how many actually realize that we are an official non-profit. Our mission is not to fund research -- as obviously we don't have the means for such huge endeavors at this point. We just want to make a difference locally in the life of women and their families battling any type of cancer. Whether it is financial help for those in need, funding treatments or emotional help. Small things can make a huge difference in the life of someone battling cancer.

The Princesses have also been meeting to plan our fundraising efforts for the year.

Please mark your calendars for our 3rd Annual Dance Like a Princess Silent Auction on May 19th at the St. Joseph's hall in Amesbury. If you have or know of anyone that could donate items for the auction, it would be greatly appreciated! Businesses willing to make a contribution will be highlighted in our brochure for the evening, on our website and on our Facebook page.  

Lastly, check out www.toughwarriorprincess.com. We are now selling Tough Warrior Princess memberships. Becoming a member can be nothing more than a show of support.  It is your choice. You can use your talents to help make someone's journey easier -- cooking meals, rides to chemo, fundraising, etc.  We want to build a network of funds and people to really make a difference.  

And for me the best news of all -- Tomorrow I am celebrating 3 Years Cancer Free!!!    It is a gift that I don't take for granted.  

 

 

Blessings!

Patty

Determined to keep moving on!

Happy New Year!

New Year's thoughts.. thought I might learn to cook in 2012.... No, just kidding. Not where my efforts belong and it sounds like torture. I have had the last week of the year off and due to Mike's recent ACL surgery on his knee there is no skiing for us, so we have been home. Most of the week I haven't felt great. The stomach bug has ripped through everyone I know, but I seem to have escaped the extreme of it. I just felt off for days on end. I spent those days cleaning closets and organizing in hopes of feeling more in control and organized in my life. I have had some time to be still and ponder and reflect and think about how to energize for 2012. I wish I could say I came up with something amazing, but really haven't. We think of the new year as a new start and it is and I'm looking forward to a new year ... but every day is a new start and a new opportunity.

For 2012, I plan to keep myself surrounded by those who enrich my life. The people and thoughts you surround yourself with, in my opinion, make a huge difference in your life. What are your plans for 2012? Put it out there - so we can all hold each other up!

The Tough Warrior Princesses have been on a break and need to re-focus and energize. It is definitely a cycle and knowing what to do next is a challenge. The line between the passion and the amount of work that it takes and knowing when to get out of people's faces is always in the thought process. There has been so much happiness and sadness this year for our group. Above all we have built a support system like none other. I look forward to our 2012 experience and doing all the things we need to walk 60 miles again as well as growing the Tough Warrior Princess non-profit and helping and supporting those in need.

Thank you for reading and supporting me! The connections I have made from this blog are astounding and I appreciate each and every one.

I wish you all the best 2012!!! Where hopefully we all take small steps to embrace our experiences and work to improve our lives and the lives of everyone around us.

Blessings,

Patty

Stressed?!!!

This time of year starts to get crazy for all of us. Thanksgiving is in the air and Christmas around the corner. The calendars fill up with events - both ones that we are happy and not so happy about. The to-do lists grow longer. I know this time of year is always more stressful for me.

We all know what stress can do to our immune system. The studies conflict, but stress is linked to cancer and tumor growth. Being a stressed Type A person by nature I am in constant battle with the stress reaction as it is very real in how it affects my body. I believe that stress is a huge cause of inflammation in the body and that causes many, many physical ailments.

I had considered myself doing quite well with my stress response, and keeping things in perspective. Lately, not so much. The house has been torn up as we try to put new floors in 3 rooms upstairs, work is busy, family is busy, there is worry about health and circumstances of family and friends and it goes on and on. So I am trying to reel it all in and get things back in perspective and focus on the moment and not worry about the details of later or tomorrow.

Well, that is easier said than done!!! Here are my top stress relievers:

Exercise Always - I exercise consistently whether walking, running or doing bootcamp. I know, however, that this time of year is when it is easier to skip workouts because of the calendar, the cold, the dark, etc.... I am trying to keep this to a minimum this year. Every time I exercise, I am thankful that I CAN exercise. My body is healthy and strong and knowing that gets me through the toughest workouts. I try to remember the days when I couldn't exercise or thought I never would again and that puts me in the grateful mode. I feel GREAT afterwards and the stress levels are definitely down as a result.

Breathe Deeply - I have stopped a few times lately just to breathe. I notice that I barely breathe. I am consciously trying to take a few deep breaths throughout the day. A large inhale, hold it for a bit and then exhale it all out slowly. It is an instant calmer.

Keep Perspective - on the big picture, on the little things - on everything.. Enough said!

Connections - I try to stay connected consistently to the people who enhance my life. It's easy to let life take over, but there is never an excuse! Venting to a friend, sharing a story, just saying hello - it always helps. I also try to make a small difference is someone else's life as often as possible. A smile, a kind word, showing some empathy. I am also always focused on new connections and how those connections can change your life.

I am interested in some feedback here. What do YOU do to minimize stress? My latest attempt is a stab at testing to see if reducing/eliminating white sugar and flour changes my stress levels -- amongst other benefits I am looking for. It's been a couple of weeks and the results are not in. I will keep you posted.

Here's to a less stressed holiday season for us all!

Blessings,

Patty


















PATTY



http://www.pattys3day.blogspot.com

An October Update....

In my last blog post(a long time ago), I talked about the inspiration and beauty of the 3 Day walk and what it's like to be surrounded by people all fighting for the same cause. Magical.

A few weeks ago me and 3 other Tough Warrior Princesses, Cheryl, Sherri and Jody all traveled to Washington D.C. to volunteer to work the 3-Day walk there. We volunteered for traffic control. We flew into D.C. early Thursday morning in order to be there the day before the walk started so that we could attend "crew" meetings that instructed us what we would be responsible for over the coming 3 days. Our Traffic Control duties seemed like they shouldn't be too difficult and we were hoping to get the opportunity to cheer on walkers. Well.... our duties as traffic control were a bit harder than imagined. To say that we were soaked, muddy, tired beyond anything I have experienced would be an understatement.

The weekend was wrought with emotion as Jody experienced a loss in her family while we were away. Our teammate Maurine was facing new treatment for her advancing breast cancer that Monday, and our thoughts never went far from another teammate and her beautiful young daughter, who are experiencing some extremely tough times.

Arriving home, I don't think I have ever been so happy. Seeing Mike standing in the terminal waiting as we arrived from our flight was the highlight of my weekend for sure!

It was a long weekend spent for a cause so near and dear to my heart. I was challenged physically and emotionally. The three women I shared the experience with were my rocks. I'm honored to have done this with them. I'm very glad to have had the experience. Thank you and congratulations to all the D.C. walkers! $7 Million raised!!! I will tell you it is much easier, in my opinion, to walk 60 miles then Crew the event. I think I'd even walk 120 Miles!

The next day, I had the opportunity to take Maurine (fellow Tough Warrior Princess) into Dana Farber to start a Phase I trial treatment. Maurine has been in trial treatment before, but not Phase I. We arrived at 7:45 in the morning and stayed until 8:15 that evening. To say that Maurine is a guinea pig would be an understatement. We spent the day on the research floor - Maurine had tests run in the a.m. and then, once cleared had her first treatment of this new trial. After each weekly treatment that Maurine will now receive, she then has to spend 8 hours in the research lab having heart and blood tests. She is one of 16 women in the entire world enrolled to this trial. It was an eye opening experience... scary, exciting and interesting. Side effects? Drug interactions? Well some are known, but lots aren't. She is the research! Despite what the circumstances were, Maurine and I had a great day. (at least I think she had a great day - I know I did - but I wasn't the guinea pig.) We laughed a lot, because if you know Maurine, she can make any circumstance comical. It wasn't all laughter, as we talked a lot about life and how unfair it can be. But if you put your situation in perspective, it usually isn't all that bad. Maurine bounced around the Dana Farber building entertaining her chemo nurses from the prior trial and even entertaining her oncologist. She opined about her thoughts on the cure. Of course, she always has a new idea brewing!!

In honor of breast cancer awareness month, I must say this. In watching Maurine deal with the side effects of the trial, about getting bad news of another friend with late stage metastatic breast cancer, in remembering it is the month I lost my young mother to breast cancer 17 years ago on her 25th Wedding anniversary...

It seems to me that we often make a breast cancer diagnosis look easy. Look at the images on TV, all the talk of survivors, all the pretty pink.... I know that I have always been vocal about the bright side of my experience and always say in some strange way it has changed me for the better. It has and I am grateful and I live differently now. But, going through it was Hell for me and my family and friends. There is nothing uplifting or pretty about it, as with any and all cancers. It is not a feel good experience. Yes, there are better treatments than their were 17 years ago when I lost my mom... but there is NO CURE. That is what needs to be focused on not just in October and not just breast cancer.

Having got that off my chest....

We have also spent our time recently in the Mellon family raising funds for Juvenile Diabetes for the walk that Katie and her 'Krew' did in Boston on October 2nd. The following weekend we continued our fundrasisisng efforts as we hosted the Roberta Mellon Memorial Tournment at the Amesbury Golf & Country Club. The tournament was a great success and we are blessed with some great friends and family. Looks like about $4,000 was raised after expenses. Most of the money will go to Juvenile Diabetes Research Foundation and a portion will also go to the Amesbury High School Golf team. It was great to have some members of the golf team present and playing in the tournament. The local business community of support was fantastic!

Our Tough Warrior Princess Team training continues for the upcoming October 30th Komen 5k Race for the Cure. 9 weeks ago, we started a Couch to 5k running program and the turnout was amazing. We have runners and walkers at all levels and since we are training at the track, we can all run our different paces while motivating one another to continue. We will continue training and will be running as Team Tough Warrior Princess on October 30th in Boston. If you are interested in running, sign up and become a Princess. The more the merrier!

The Princesses got together this past weekend for a night out. I was so nice connecting with some that I don't get to see as often as I would like. It seems that everyone on this team somehow plays off one another and each person is a better person as a result. Going into the 2011 walk, I was worried that a team of 32 people really couldn't share the close bonds like a team of 10 did -- How wrong I was!